Transforming grief into action. Uplifting stories. Advancing change.
Project Butterfly is a community-based program that looks at the circumstances surrounding pregnancy and infant losses to improve care. We gather information from various sources, including hospitals, social service programs, and most importantly, families who are open to sharing their stories.
Losing a baby is one of the most painful experiences, and every family deserves to have their experience honored with care. Our work is centered on uplifting your story and affirming that it matters.
Every story is a call to action, every review a step toward equity. Together, we’re creating a future where every baby can thrive, and every family is supported with compassion and care.
What We Do
The Allegheny County Fetal-Infant Mortality Review (Project Butterfly) exists to reduce fetal and infant deaths by examining the circumstances surrounding pregnancy and infant loss, identifying systemic gaps, and driving compassionate, evidence-based solutions. ​
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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS).
What You Can Do
​Sharing your story with Project Butterfly is a powerful act of love, remembrance, and advocacy.
When you open your heart and
your experience to us, you help
shine a light on the realities
families face during pregnancy
and infant loss—realities that too often go unheard.
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Your voice helps guide meaningful change in hospitals, programs,
and systems, ensuring that care becomes more compassionate, equitable, and responsive.
Who We Are
Project Butterfly is powered by a network of dedicated partners
who share a commitment to
honoring families and improving
care. By combining medical expertise, community support,
and family voices, this partnership strengthens the quality of care, expands compassionate
resources, and ensures that every family’s experience guides
meaningful change.